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Written by Megin Potter  |  Photos provided

As a child, Lydia’s life was flipped upside down because of her stutter and the medical professionals who were woefully uninformed in their knowledge of this speech impediment. Now, she’s helping to make sure others who have a stutter suffer less than she did. 

By age four, Lydia Yaiser spoke with a stutter. Although stuttering is caused by a combination of factors including genetics, language development, environment, and brain structure, one thing that does not cause a stutter is stress. 

Why stress has become a diagnosis frontrunner for everyone from the casual observer to trained professionals is unclear, but the wrongly perpetuated misconception and discrimination that results from this narrow view of stuttering is undeniable. 

The faulty assumption that anxiety (springing forth from some nefarious source) was the cause of Lydia’s stuttering ultimately transformed her life. 

Lydia Yaiser

 

Stuttering in School

It is estimated that stuttering affects three million Americans, yet it remains a disability that is very much misunderstood. 

While a student in the Saratoga Springs School District, a teacher isolated Lydia from other children in the classroom because of her stuttering. 

“She believed they were starting to develop a stutter from watching me speak. This is not possible. Stuttering is not contagious. The kids were merely copying my stutter because they thought it was cool and an interesting way to speak,” remembers Lydia. 

Dangerous Assumptions

Far from being harmless, the prevailing misconception that stuttering is a manifestation of nervousness perpetuates in both subtle and totally blatant forms of discrimination. As a result, someone who stutters will often feel shame when they speak and may avoid certain words, or speaking altogether. 

“The most drastic experience I have had growing up in Saratoga was with my pediatrician who was so uninformed on stuttering that I would call it pure negligence,” explained Lydia. 

When she was eight, Lydia went to the doctor for persistent cold symptoms that her mother suspected could be allergy related.

At the busy office, Lydia and her aunt were paired with a doctor they’d rarely seen before. He falsely concluded that Lydia’s symptoms “indicated extreme stress” caused by abuse. This resulted in what Lydia calls a “horrible ordeal” that lasted nearly a year and a half, during which Child Protective Services (CPS) removed Lydia from her home. 

“To put a very complicated situation into a nutshell... The destruction caused by CPS was so traumatic that I have tried to block out as much of the memories of it as possible,” Lydia said. “Only those who have been through such severe trauma understand the pain and desire to forget the events. It’s a feeling that never leaves your body. It’s perpetual trauma.” 

In the Face of Pain 

Regardless of the lifelong traumatic experiences and discrimination, Lydia persevered to become an exceptional student. While attending acting classes in Los Angeles, CA, she met two Disney Channel actors who referred her to an online high school based in Dana Point, CA that they were attending designed for high-achieving students in the entertainment industry. Lydia welcomed the change and the challenge. 

This year, Lydia received a full scholarship to Stanford’s Summer Program and studied immunology at Harvard’s Summer School. This fall, she became a Skidmore pre-med student and will also be shadowing a Saratoga Springs orthopedic surgeon.

“As an aspiring physician, I believe that no aspect of the human experience should be foreign to us or be only superficially understood. This is why, as a pre-med student, I make every effort to seek out opportunities that expand my experiences and feed my intellectual curiosity. I am fascinated by “the human experience” that we are all here together for a reason, and as a physician I will strive to make inroads ensuring everyone is represented, heard, and understood,” said Lydia.

Nathan Mallipeddi

A Presidential Commendation 

In May, Lydia’s friend, Harvard student Nathan Mallipeddi was the $75,000 grand prize winner of the Harvard President’s Innovation Challenge for his startup company MySpeech, a tech platform enabling access to high-quality speech therapy. 

President Joe Biden sent a letter of congratulations to the award winners, recognizing MySpeech specifically and describing his own experience with stuttering. 

“I remember the pain, dread, and fear of speaking in front of a group or even to another person. But I also learned that when you persevere in the face of struggle, you will be stronger for it. And the efforts of MySpeech will help so many people persevere. You will help change people’s lives for the better.

Lydia is looking forward to a year of growth and worldwide impact in her own startup company but she happily finds time to help scale MySpeech by working on the UX development and writing grant proposals.

Becoming a Voice for Others

On their website, MySpeech states that there is only one specialist for every 30,000 people who stutter, explaining the lack of knowledge and treatment surrounding the disability. 

“The lack of medical education on speech issues should scare us all,” said Lydia. “Any child, any person, anywhere, can be affected by these speech issues and they are completely normal! The lack of understanding isn’t just concerning, it’s dangerous.”

By persevering through his own struggles with speech, Nathan Mallipeddi has led efforts helping more than 20,000 people in 25+ countries.  The MySpeech app, currently being beta-tested with approximately 200 users, continues this work by facilitating scholarships for speech therapy and speech therapists, providing educational videos and a community network. 

Today, Lydia’s stuttering is much improved and she is grateful for the opportunity to help Nathan grow MySpeech. 

“I never used to speak about stuttering, but I realized that if I don’t, then I’m missing a valuable opportunity to help someone. If I can be of help to spread the word on how to get a therapist who specializes in stuttering, by simply going to the MySpeech app or website, I gladly step up to the plate,” she said. 

“I am so glad to be where I am today, pursuing my medical career and being a voice for those who aren’t heard. That doesn’t just stop at stuttering. Being a doctor is committing to being a lifelong learner and I’m here for every second of it. As doctors, it is our duty to understand the human journey, and no one should be left behind.”

For more information about MySpeech, go to myspeechapp.org